It is 10
p.m. now, but having just taken another steroid
tablet, I probably won't be able to sleep for quite
awhile, and then most likely only for a short time -
a couple of hours or so. The steroid makes me very
jittery and nervous, and I was already deeply
concerned about my doctor visit today, and it turned
out that I was right to be concerned and fearful of
what he would have to say.
It has now been more than four months since we
discontinued the Alimta chemotherapy treatments in
late June. In early July, when I had another X-Ray
taken, there was no change to the tumor but it had
only been a little more than a week, so the doctor
said I didn’t need to come back for another month.
In early August there was still no change. This
time he lengthened the time to six weeks, when there
was still no change. This was just as we were
moving, however, and it was just shortly after that
time that I began having problems. Anyway, it
looked good on that visit and he increased the time
to two months, which brings us to today’s visit.
It wasn't good, but deep down I think both of us
knew it would not be. The increased coughing and
larger amounts of blood in it, as I had early this
year when the tumor grew so rapidly; terrible
tiredness that doesn't ever go away, and makes
everything seem so difficult to even attempt...
difficulty sleeping, mostly due to fear and concern
I guess, and the deterioration of all the strides I
gained last summer in just a few weeks; all these
things pointed to renewed growth of the tumor, and
the X-ray confirmed that. It has grown from 3
centimeters to 4-1/2 centimeters in the last two
months.
As agreed with the doctor, I had prepared just in
case I needed to begin chemo again by continuing to
take the Folic Acid as required, I took the steroid
yesterday and this morning before leaving home, so
there would be no delay in starting treatment if
necessary. The doctor was very pleased I’d not
forgotten, so I began taking chemo treatments again
today, had a Vitamin B12 shot, and a flu shot.
I was reluctant to take the flu shot, because after
the only one I ever had I became quite sick. After
hearing what he had to say about it, and his
concerns for me if I didn't take it, I agreed to
have one. He said the likelihood of getting
influenza from taking the shot was much less than
the likelihood of getting it if I did not take it.
He said they've improved much since I had one about
six years ago, and with my immune system so
compromised, a real bout with influenza could kill
me quickly. I am already having some reaction to
the shot, but just the normal reactions it said you
might get for the first 48 hours.
Despite the fact that my blood pressure was really
quite low just before I saw the doctor (110 over 68)
my stress level is really high tonight. It has been
a very long and tiring day for one thing. Dr.
Ahmann is at a second office they have in Medford at
the opposite end of town on Thursdays and Fridays.
All my previous visits had been on Mondays and
Tuesdays, and I had to first go to Rogue Valley
Medical Center, just across the street from this
office for my X-ray, and I'd never been there
before. It is quite large and not very well laid
out or marked, with no "maps" to show where you are,
etc., and we got completely lost there.
We had gone to Medford early to run a few errands,
and I had to buy some items that Jim would have been
lost trying to find by himself, so I was stressed
and walked to death from going back and forth in a
new store I'd never been in, trying to remember not
to touch things, etc., and get in and out as quickly
as possible. I was worn out by the time I got into
the hospital. Luckily we latched onto a wheelchair,
because it was literally miles, I think, before we
got out of there again.
We then went over to have my blood work done, and
then waited a bit to see the doctor, too.
My blood oxygen level is still down, at about 87
now, from a high of 92 that it had been running each
time. I think that's a direct reflection from the
allergy problems I'm having, that give me so much
congestion.
We had to wait everywhere we went today (my first
appointment was at 1 p.m. for the X-ray, 1:40 for
blood work, 2:40 for the doctor, and the chemo
treatment wasn't scheduled). I had to wait a long
time especially for the chemo treatment since I had
not been on the schedule and they had to prepare all
the medication; so, we were much later getting out
of there than planned, then we went to dinner at
McGrath's Fish House, because I know Jim loves
the food there, and I'd just been thinking of having
to go through an appointment like that if I hadn't
had him beside me... it is almost unthinkable. When
I suggested it, (McGrath's Fish House) he
literally whooped and hollered… it was definitely
the right choice to make him feel better. Neither of
us had anything to eat all day but a few crackers.
Jim was in a seafood lover’s paradise! They had an
entrée that featured four types of prawns; wood
fired on the grill, stuffed with crab, coconut
prawns, and deep fried prawns. On top of that, they
serve a lot of food! He had four of each kind in
the entrée, with freshly baked sourdough, clam
chowder (instead of salad), and he had French Fries
(ignoring my frown) for his other option. In
addition to that, he had an appetizer, they serve of
a big plate of calamari rings that he’s had before,
and is absolutely delicious. It’s served with aioli
sauce that’s really great here. Tonight I tried it
for the first time, and really liked it. Jim told
me to take the small pieces, as they were the
tenderest, and they were. Then, after I got home I
looked up the definition on the Internet, because we
couldn’t remember if calamari was squid or octopus,
but I really thought they were octopus, which is why
I tried them. I had decided some time ago that
squid was right up there with several other things I
consider too exotic, or don’t like the looks of, or
something. Well, now I have eaten SQUID! Yuck!!!
I couldn’t believe it… and I liked it! Oh well…
Anyway, everything we had was great, but it was
between 7:30 and 8 sometime before we started home,
and we didn't even do grocery shopping; we didn't
get home until about 9. There were a lot of deer on
the road tonight, and the last one we saw waited for
us and then ran right out in front of us! Luckily
Jim managed to miss him. Their presence made the
drive home slower than otherwise. I’ve never been
able to figure out why on some nights they seem to
be around every curve, and on others there are none
of them. I haven’t been able to identify what is
the cause for this, for it seems always to be one
way or another.
We left here about 10 this morning, so that was an
11 hour day away from home for me, and a stressful
one at that. We were both very thankful the Lord
saw us through it, and we breathed a very deep sigh
of relief when we reached home, where Missy was
waiting faithfully, all her "meow's" for dinner all
saved up and ready to burst forth as soon as the
door opened! I half-expected her to jump up onto
Jim’s chest, all claws out and firmly implanted in
his skin, to get right into his face so she could
tell him what she thought about us making her wait
so long for dinner. She didn’t do that, however,
and she waited pretty patiently for him to get it
ready for her. Once we were home we went into
letdown from the tiring day, all the pre-stress and
after-stress, and so on. So, what’s next, and where
do we go from here?
Well, now it is time to gear up again, bring up the
determination (with the Lord's help) and begin my
climb back out of the deep valley. Without Him I
can do nothing, but with His help, all is possible.
I will renew my prayers, and keep them up, many
times a day, trying to bring myself closer to Him,
because that lifts my spirit and helps me in my
battle.
I have to say that although it was bad news today,
it was not as devastating as it was in January when
I heard almost the same thing for the first time,
because it was completely unexpected that time I
suppose. Since I was concerned about it prior to
this visit today, and because I’d heard it before,
and had been able to deal with it, it made it easier
this time to hear. Jim said he was surprised at how
well I took it. He confided in me that he saw the
X-Ray on the computer at the imaging lab when it was
taken. For the first time a technician allowed him
to go into the small room with him, so he knew the
result before we left for the doctor’s office. That
must have been difficult for him, but did give him a
little time to absorb it on his own, and he feels a
deep responsibility to be there for me when needed,
and this helped him get his thoughts and feelings
together a bit more, so he’d be ready to give me
whatever I needed from him, when I needed it. I’ve
said it many times before, but I don’t see how he
could be a better “caregiver” for me. He is
wonderful.
Now the concern will be whether this treatment can
perform again, and as well, or better than it did
earlier. We are kind of in uncharted ground,
medically, as far as I know. I do have the secret
and know how I can come to peace with this concern.
I will just give it to God, as He has asked
us to do, and remember to have faith in the passage
from God’s word, in the book of Romans that says…
"And we know that all
things work together for good to them that love God,
to them who are the called according to his
purpose." Romans 8:28
You see, I have part of Him residing within my heart
in the form of the Holy Spirit, and He has been
there at all times since my salvation. I
know this, because He never fails to guide me, He
never fails to provide all that I need in a
spiritual way. There have been more instances that
I can possibly enumerate here, and I won’t try.
Why? Because if you have not allowed salvation
to come to you, you can’t really know what that
means, because you don’t yet have the faith to take
that final step into the unknown to save yourself
for eternity; and if you have salvation, then
you will understand perfectly what I mean.
For tonight I will rest in the Lord’s arms, and ask
for His help in this. I have a page on my website
that is a wonderful blessing to me in times of need
like this, and one of my favorite parts from this
page says…
“Stay firm and let
thine heart take courage” Psalm 27:14
Stay firm, He
has not failed thee
In all the past,
And will He go and leave thee
To sink at last?
Nay, He said He will hide thee
Beneath His wing;
And sweetly there in safety
Thou mayest sing.
You can
read this page here:
http://www.marciesalaskaweb.com/faintnot.htm .
Unfortunately I don’t remember who gave this text to
me originally, but I immediately felt I needed to
put it on my website, so I created the page for it.
It is wonderful to help you find the peace you need
when facing any bereavement or suffering or any
tests and trials, as it mentions at the top. I
often turn to it when I need help and guidance, and
it gives me peace.
I have some dear friends who just lost their
grandson, and another who has recently been
diagnosed with cancer. I hope they can all find a
measure of peace on this page, and you may know of
someone who needs something such as this, too.
My next doctor appointment is set for December 7
(isn’t that Pearl Harbor Day???), when I’ll have
another chemo treatment along with the other three
appointments. This one is set for earlier in the
day, which we really prefer, especially at that time
of year, as long as it isn’t too inclement, since we
really don’t like driving home in the dark, it is
such a winding, slow, dangerous road at that time of
night, especially with all the deer we have in the
area.
To bring you up-to-date on other happenings around
here in God’s Country, we are definitely into the
rainy season now, and we actually had a skiff of
snow on the ground last Sunday and again on Monday,
I believe, but it was gone later in the day, each
day, drowned in rain.
My roses are still bravely blooming. We have still
not had any noticeable frost on the ground at our
place, and while many of the deciduous trees in the
area are now sporting dead or dying leaves, and some
are already bare, there are still others brightly
colored. Each night mist rises from the river, and
fog hangs over the mountain on the other side,
settling into wisps here and there as it rises
during the morning hours to burn off in the heat of
the sun. This morning we ran into fog several
places on the road, but the temperatures were in the
high 40’s when we left here, and by the time we
reached the interstate it was clear until we reached
the Siskiyou summit, where about a mile on the
California side was still shrouded. Down the other
side it was foggy most all the way down, but we were
blessed by not coming up on any slow trucks all the
way down in the fog, an almost unheard of
circumstance. There are always large semi
trucks crossing the mountains there. It is the main
western artery from California to Oregon, or LA to
Portland and Seattle.
Everything is fresh and bright and green again, and
inside our garden the ground is thrusting forth
almost a solid carpet of green… all of which I’m
assuming are weeds, at least it looks that way.
Well, it should be easier to work now that it’s not
hard and dried out, assuming I get the chance to do
that soon, if we get a respite from the rain and
snow that are coming our way. All the moss on
rocks, stumps, trees, etc. that are in the shade is
colored a bright lime green now, reveling in all the
water it’s receiving. The groundcover out at the
highway edge of our property is thick and lush, all
perked up and brightly colored.
Jim pulled his gold dredge
from the river just a few days before Halloween, I
believe, and has been working on things around here
since then that had been put off, as well as helping
me again since I wasn’t feeling well. AJ (for more
about AJ if the name is unfamiliar, see
Fall Dredging) stayed camped in a tent next to
the river until yesterday, when he left for Florida
to begin a new job. He ate dinner with us most days
after he moved his camp close by, providing the meat
sometimes, as well as bringing some entire meals to
cook here for us. He was a big help when I didn’t
feel well and pitched right in to help cook and/or
clean up afterward. He helped us move furniture, or
anything else we could use help with, for that
matter. He’s a very nice young man and we enjoyed
his company. We’re going to miss him. He is just
about the same age as my two sons.
Speaking of which, my older son Dan, and his family,
came to visit in October. Younger son David had
planned to visit at the same time with his daughter
Callie, but he injured his back and had to postpone,
so they will be here for Thanksgiving next week.
That will be great, and because of the holiday it
will give us more time together, and that’s always
very welcome.
Jim recently attended two important meetings in our
area. He was asked to speak for and represent the
mining community at the Klamath Basin Watershed
Conference. This was formed after the water to
irrigators along the upper Klamath in Oregon was
“turned off” and made all the news in 2001. It was
supposed to be made up of all stakeholders in the
basin, which extends from the Cascade Mountains to
the sea where the Klamath enters it.
It has taken them awhile to actually get someone
involved from some of the stakeholders, and there
are some involved who still feel that miners do not
even belong there as stakeholders. This is the
fourth such conference, I believe, and there is
another planned for 2008. There will also be
workshops held between now and then, which is a good
thing, from what Jim could see.
The conference was something entirely new for him,
and the presentation they asked him to make was to
be only ten minutes long, and then had to be cut to
a shorter time because some others had gone over
their time. There were representatives from
legislators, county people from several counties
including ours, regulatory government agencies such
as USFS (US Forest Service), Dept. of Fish and Game,
Dept. of Fish and Wildlife, California Water Quality
Control Board, and others; there were
representatives of the local Grange groups, there
were representatives from the coastal fishing
industry, the Klamath Basin farmers and ranchers,
the homeowners along the river (mostly in the areas
where dam removal would effect their homes), home
associations, and the list goes on, and now the
mining community, which covers all mining interests,
and the businesses and communities affected by the
tourism and other needed income brought into the
area in a severely depressed area since logging and
other income-producing
business has declined so rapidly in the recent past.
The conference was spread over three days, and this
one was held in Redding, but with all these people
(there were more than 250 in attendance at the
conference), it was very rushed most of that time.
Jim was surprised to see the spirit of cooperation
and work that went on to find solutions that would
work for everyone that permeated the conference, and
much of the time was spent in small groups they were
broken down in to help them in the search for
solutions, the focus of this particular conference.
The workshops between now and the next conference
will be where the actual work will be done for the
most part. One of the subjects that was in the
forefront of this particular conference is the “hot”
item in the news today in this entire area of the
west, and that is the fight that the Karuk Tribe
here has spearheaded to get four dams on the Klamath
River removed to save the salmon, they say. They
have put a lot of money behind this campaign, and
are being backed by some strong, and in some cases
radical environmental groups that have furnished
funds, legal representation, and more.
One claim I’ve read or heard publicly from Karuk
spokesmen more than once, on television and in
articles, I’ll share with you to illustrate the
emotional approach they are making in this battle
for dam removal.
This example is one of their main points in favor of
dam removal that says that (and this is not a direct
quote, so don’t quote me, and all the emphasis is
mine) …“we” (the white people) are still practicing
genocide on the Karuk Indians. How? Well,
here is their substantiation for that. Since we
are killing the fish with these dams, and they
can’t eat salmon as their heritage dictates, we are
making them overweight which kills them, and
we are killing them with disease such as diabetes;
all because they can’t catch and eat salmon as they
want to, and this has been going on for the last 90
years. They say their genetics aren’t made to eat
the food we are forcing them to eat, which is
why they have disease and are overweight, so
consequently, we are practicing genocide.
The other meeting Jim attended was just a few days
ago, and this was one of a series of comment
meetings that the FERC (U.S. Federal Energy
Regulatory Commission), which is the agency that
will make the decision about the dams and is asking
for comments from all interested parties. They say
their decision will be based on the comments, verbal
and written, received by them before the final date
comments are to be received, which is, I believe,
November 30 or December 1, 2006.
Jim has an entire list of pertinent subjects that he
feels need to be addressed before an informed
decision can be made, and are not being addressed by
anyone at present, that he presented at this
hearing, but I like the final one… it says, “The
supreme irony and resulting tragic consequences of
removing these dams would be to find out after
the fact that it really was not the dams, but
ocean conditions, confirmed by peer- reviewed
science, that were causing any salmon decline.”
Now, before I step down from my soapbox, I
wanted to say that there were a number of regulatory
agency people, and people from other local groups,
at the Klamath River Watershed Conference who were
thrilled to see Jim representing the mining groups;
all were strangers, but people who are mandated or
interested to learn more about mining, which is a
good thing, and who will be meeting with him in the
future to further an exchange of knowledge,
information all in the spirit of cooperation. This
is a good step in the right direction!
And, since the FERC comment hearings he has heard
from a number of people he knew only slightly, who
congratulated him on his comments, and appreciated
his viewpoint.
These two meetings are just a drop in the bucket of
what is in store over the next couple of months as
these controversial solutions are discussed and
discussed some more, solutions searched for that
will be palatable for all, and conferences, summits
(by the Oregon and California state governors) held,
and many public comments and opinions are flying
through the Internet daily. Other groups are
working toward solutions, they say, and of course
many of those involved have varying interests. Some
are valid, and some may not be, some are predicated
on business and some are not; some are based on
livelihoods, some on ideals, some on emotion, and
some on fact. How do you weigh all that, and
establish priorities? And, who is on this
commission, and what are their motives? Ah, it is
all very confusing and so intricate that it is a
very much unknown equation and its outcome is much
in doubt. If you want to find out more about this
controversy, you can visit the Klamath Basin Crisis
website at:
http://www.klamathbasincrisis.org/ , or the
Klamath Bucket Brigade’s website:
http://www.klamathbucketbrigade.org/ , to see
more on all views in the matter.
And, while this particular controversy is a local
one, don’t think for a minute that it does not
affect, or will not affect, you in your location.
There are similar battles and controversies already
in process in many other parts of the country,
backed by these same radical environmental
organizations, or ones like them.
Okay, removing myself from my soapbox…
Since I’ve not been well the past few weeks, and so
I didn’t feel entirely useless, I found that if I
reduced the amount of moving around I did, to help
control the amount of congestion, resulting cough,
and loss of blood in the cough, I could sit at the
computer (with an air cleaner nearby), and do some
work, so I devoted more than two weeks to a big
update on my website, something that was sorely
needed, and which gave me a sense of accomplishment
and productivity. Right after finishing that, I
launched into what I originally thought would be a
“redecorating” of my kitchen/recipe section of the
website, and I’m still not quite finished with it.
I have expanded my original goal, and have included
a lot of good nutritional, health, and diet
information. Some is geared to cancer patients,
some is very useful to those with many illnesses and
health problems, and some is geared for everyone who
is concerned about some of the things they might be
getting in their foods, meals, and food items they
now buy. This is all good, practical information
that I’ve been researching, and have discovered some
things that surprised me, and they will continue to
help me to help myself improve my overall condition,
as well as helping in this battle against my
cancer. I will send notification in a short time so
you can all see it when it goes up online, and hope
you’ll check it out. I’ve also included a lot of
new recipes, kitchen helps, etc., and all in all, it
is quite a large amount of new information for all.
What I’m working on now is to link some of these
informational things to recipes in the recipe
section, so you can see how to turn it all into
practical use.
Today I
need to spend time doing a variety of other things,
such as paperwork that shouldn’t be put off, and to
put together some special helps for the chemo side
effects that will begin to really kick in tomorrow,
after I stop the steroid treatment tonight. The
first thing to be affected is usually my mouth and
throat, and I will have to make dietary changes to
mitigate those problems, and keep up my weight at
the same time.
Well, those are the highlights around here, I
believe, and since we are going to be very busy
trying to get me through the beginning of chemo
again, because I kind of expect the side effects to
be bad this time, as they were when I first started
taking Alimta, we are planning now to have a subdued
Christmas this year, but we will celebrate as well
as we can. It will just be a quiet celebration. We
have done these before when I was ill, and I feel
that the next two months at best, if all goes well,
will have to be pretty devoted to getting through
this, and beyond it.
We still feel very blessed, and the wonderful things
that have come out of all this keep mounting up. I
know that’s hard to believe, but it is definitely
true.
I took some time lately to think about something
several people have asked me about. They wanted to
know if I would go back and change something in my
life that might have allowed me to avoid having
cancer. I tried to analyze my thoughts about this,
and have decided that I would not alter anything.
What would I have given up? What if whatever I
changed would have prevented me from having the
children, my three sons? I don’t even want to think
of that!
What if something I changed would have prevented me
from finding God, albeit late in life? I would not
change that for the world, literally.
What if that change prevented me from meeting Jim?
I can’t even think of that as an option. Without
him I would not be here today, I firmly believe
that, and while our relationship and our marriage
have changed, forming a new shape from the changes
in our lives, we have a wonderful relationship and
marriage, and a love that continues to grow. Who
could ask for more? We truly have been blessed.
We want to thank all of you for your prayers and
continued support and help for us. It means a great
deal to us, and we are so thankful to have so many
wonderful people who care about us. I’m afraid I’m
going to ask you for more prayers for us to get
through this, as they are very important. Please
pray for us if you can.
It’s now actually almost 4 a.m. Friday morning, and
time to close this update. Tomorrow will be a day
of recovery, and then whatever else I have energy
for, but I still have to take the steroid tomorrow,
so I won’t wind down until the next couple of days,
when side effects will set in immediately. I’m
going to try to keep a record of them this time,
something I haven’t done before in an organized
manner. The only record is what updates appeared in
my journal, and those were not complete, or arranged
in any organized manner. I’d like to take them all
and put them in some kind of chronological order, of
side effects, and what medication I took, all alone,
uncluttered by anything else. I’m finding when
researching for other people that records like this
are important to others who are going to undergo the
same treatment, or are having it now, to help them
assess if what they’re experiencing is normal. So,
I guess I’ll try to rectify this error as well as I
can.
I was thinking of writing up a year’s end holiday
letter, but then I thought that with all the updates
we sent out this year, many more than any previous
year, it would be pretty redundant, so I guess I
won’t. Please know that we love all of you, and
hope you all have a wonderful Thanksgiving and
Christmas, or whatever you celebrate, and hope you
enjoy a peaceful and happy holiday season with your
families around you. Our best wishes go out to you
all.
Marcie and Jim
On the Klamath River
November 16, 2006