| May 3, 2006
Hello to you all,
Yesterday was my next appt. schedule for my doctor visit
and chemo treatment, and I was looking forward to it.
We’d had company most of last week, and that helped take
our minds off the coming visit, although it was there in
the subconscious, I guess, because I found tension
across my shoulders which I hardly ever have anymore.
This last three week period between appointments was
another great improvement, so we had no reason to think
there would be anything bad to report, but you just
never know, sometimes. Dr. Ahmann had said that unless
I’d felt bad, or there was a bad report on some of my
tests we’d not do an X-Ray this time. He was waiting
for professional diagnosis on the comparison of the last
two X-Rays, to confirm what he felt about there being
quite a bit of improvement in the size (shrinkage) of
the tumors and fluid.
Although it was quite a struggle at first after this
last chemo treatment 3 weeks ago when I had to fight
hard against the desire to rest a lot when I came down
from the steroid at the beginning of this period of
time, once I worked through that it set a precedent, and
the rest of the time I had fewer or greatly reduced side
effects in all but one area (upset digestive system),
and was able to keep on the move and get a lot done. I
even spent several mornings outside weeding, something
I’ve not been able to do for several years now. That
was a real treat. I had some strong motivation,
however, as spring always brings on the need for spring
cleaning since that was the way I was raised, and I
wanted to get a lot done to prepare for the summer
season which is starting very soon this month, and we
were expecting company this last week, and again in
another week or two, and I wanted to be as prepared for
that as possible so we had maximum time to visit,
especially since it takes me a long time to do things
with my continued oxygen restrictions.
I can go quite some time without it if I am just
sitting, but if I move around it creates problems right
away. There has been improvement in that also this last
month, however, that is noticeable. That’s what allowed
me to go outside and work. Previous to that, any time I
had to bend over double it brought on a coughing spasm
that exhausted me, since I don’t take the oxygen
outside. Air is better out there, and I have a limited
amount of portable bottles to use outside. Since I
can’t get down on my haunches, or on the ground, I have
to take something to sit on that I can get back up from,
and then have to move it very frequently, also making it
more difficult to breathe, since I am rolling it over
rocks and gravel in the walkway, and that’s not exactly
a smooth surface. Each day I went out I had an
improvement in the breathing, although the unused-to
physical activity made me feel like I’d strained every
muscle in my body. All in all it was very good for me.
We have to look all around us carefully each day now.
It has not rained in more than two weeks, and the
beautiful weather has things growing so quickly that
there are big changes all around us every single day.
All the redbud trees alongside the highway, mostly in
the Hamburg area, are full of bloom and are beautiful
this time of year, all the dogwood is in bloom, and
there are so many more than you thought they were, that
coupled with fruit trees here and there, Madrone
sporting hanging clumps of white blossoms, and unknown
other trees blooming, it is quite breathtaking, along
with everything else that is deciduous changing as they
leaf out for the summer. Our little glen around the
house is encircled by wild dogwood in full bloom all
along the slopes, we discovered two camellia bushes that
are blooming profusely behind the two large hydrangeas,
and one peony, something I’ve always wanted but haven’t
ever even seen except in magazines so far. It has two
large blooms in bud which will be pink, but don’t know
yet what form they will have. They are large buds, and
I hope to get photos when they bloom. Since they are in
shade much of the day there are not more blooms, as this
does best in full sun, but I’m not complaining. The
huge hydrangea bushes are leafing out nicely, despite
the deer all thinking they look good and munching here
and there on the new growth. This is the only thing we
chase them away from, and we’ve had a lot of deer
lately. Last Sunday we had three buck deer out there
for a couple of hours taking a nap on the lawn after
having lunch, and after they left, a couple of doe
munched their way through, too.
Yesterday morning we had an interesting incident (which
slowed us down in getting ready to leave, too). Two doe
had come into the lawn to browse, and then a cat that
frequently comes by to try to catch birds feeding at our
feeders came down the path of the slope in front of us.
The nearest deer stopped to watch her closely, and when
she began coming down into the lawn she stamped her foot
at the cat. This is a large part-Siamese cat with long
hair that has evidently spent much of her time outdoors
for a long time, as it did not deter her, and she
actually began to stalk the full-sized doe as she turned
back to feeding on the lawn. The doe turned back toward
the cat and made a false charge at her, who reluctantly
turned away and began a “what deer – I don’t see no
deer,” attitude while studiously looking in the
opposite direction and then, they did a cat-deer thing,
I guess, with first one and then the other making false
charges, then backing off, but the deer grew tired of
this quickly, and the cat immediately backed off, but in
trying to get under the deck ended up having to creep
along the front edge, and the deer could easily have
stomped her there as she had her cornered, but chose not
to, and the cat got to an opening and freedom underneath
it. The two deer went back to browsing, and the cat
remained out of sight or left through the other end
opening in the trellis, as we didn’t see her again. It
was quite interesting to see this cat stalking something
as large as a full-size deer. I don’t know what she
thought she’d do if she caught it!
I’ve been trying to gauge what parts of our area I can
plant things in and reasonably expect they’ll get enough
sun to grow things like a couple of tomato plants and
some salad veggies and a few plants that need mostly
full sun with some partial shade. A great deal of our
area has all or mostly shade, and there will not be many
things I’ll be planting in those areas, just a few
special items I’d like to have if I can find them
easily. It’s not easy when I am not supposed to shop,
and Jim is very unknowledgeable about plants. I have to
be able to describe things very clearly to have him buy
them with any success, and since Wal-Mart in Yreka has a
good-sized garden department, I’m going to try that out,
as he has to go to that area to DMV to change his
driver’s license and registration. We have been here
four months now, and he was stopped by a local trooper
the other day, and has only ten days to change it all
over. We also paid off our trailer, and Wells Fargo
lost the title (again, this is the second time), and it
is evidently going to cost us $90 to have DMV replace
it. They say we have to because we now own it, so we’re
going to try to get them to pay for it. She told us how
to go about it, since they lost it. Between changing
all three things, it will cost a pretty penny, I’m sure,
since the truck is still only about a year old, and a
full-size pickup, although it does have a short bed,
which may help, I hope. We were late getting there for our appointments
yesterday morning, as they are working on a bridge on
I-5 between Ashland and Medford, and traffic was backed
up to the base of Mt. Ashland, mostly due to people
continuing to rush down a lane that was closed ahead,
and then backing up a lot of traffic when they can go no
further… we were almost an hour late we had such a long
stop/start line of traffic to negotiate, so we were
concerned that we’d still be able to keep our
appointment, but it was just a few minutes before noon
when we arrived for the doctor’s appointment, and he
took us anyway. It was so near lunchtime that we didn’t
have to wait anywhere. There was no one at the lab
ahead of us, and we had the fastest service we’ve ever
had in the infusing room, so it all worked out pretty
well.
Dr. Ahmann was very excited at the results of the
X-Rays, which he said showed in the professional report
“significant improvement” in the tumors, and a continued
lessening of my fluid. He also gave us more information
about this Alimta, saying that he has only used it on
two or three other patients so far, and I am having the
best results already of those who have used it, so he
was very pleased about that. I told him I was sure a
lot of my improvement had to do with my altered outlook
which has improved a great deal with better news, and
with the work I have taken to lessen the side effects,
and bring myself from the deep depression I went into at
the news of this new outbreak of aggressive cancer. It
has made a big difference to both Jim and I, and he has
noticed changes in my looks, my way of walking and many
things I overlooked, but which he has noticed, and that
news has helped too.
Part of the reason that more people aren’t using Alimta
is that it is very new, and you have to have specific
types of lung cancer, not all kinds can take it, as it
has only been tested so far for these two types. I
believe it is only used with malignant pleural
mesothelioma, and for non-small cell lung cancer only,
and for non-small cell patients, they were all stages
III and IV, and had all had other chemotherapy prior to
taking Alimta. The test information in what they gave
me indicated only about 283 people of the non-small cell
type were tested, for perhaps a year at most. I am not
part of a clinical trial, because you must agree to that
before beginning one, since you may be given a placebo
(in other words, no Alimta, just fluid) so that only
half receive the medication, the others receive nothing,
for comparison. The non-small cell participants in the
study done were compared to patients who had previously
been given another type of chemo, for comparison
results, but since it was a small study, and some of the
things hoped to compare were not possible because there
were not records for this historically kept with the
alternative previously used, some things were not
conclusive. All in all, however, the Alimta did well
overall.
Studies and statistics for cancer are difficult, because
it has always appeared that attitude, outlook, and the
mental makeup of the individual patient has varying
effects that are difficult to measure, or to even know
are there when studies are sometimes initiated. Cancer
and the patient and how they are able to manage their
case, cause effects not measured by medication alone,
etc., make these statistics difficult to standardize,
and to gauge the results with a group of any patients.
I try to remember that when reading any of them, and
even if I forget, the information given along with
results make this abundantly clear before you are
through reading it. You can see how limited the studies
are so far, since it is such a new medication, but my
results and the others taking it are being charted for
present and future statistics to help doctors in
evaluating whether this medication is right for a
particular patient. There are further limitations
placed at their discretion, for individual
contraindications, due to personal health, allergies,
reactions or other types of qualifiers that would
prevent all of the two types mentioned from being able
to take it, or to having it recommended for their
particular case.
It is so wonderful to be feeling good enough to be able
to do things and feel productive again, that it’s hard
to describe. I still am very weak, as my muscle tone
all disappeared again with the added inactivity of the
last few months, and I have a lot of work ahead of me,
but yesterday for the first time I went into the
hospital walking, and did not use either oxygen or a
wheelchair during my entire day, except for a few
minutes two times on my return to the truck in the
parking lot. My oxygen level was down because of it,
dropping from the low 90’s to 82, but it was good enough
to get by, and if we can open the truck windows when
driving I don’t need it for that, as the fresh air
provides plenty of good oxygen in the open country, once
we get over the pass, and have little traffic on the
road.
The canyon walls from the Yreka turnoff to about the
Tree of Heaven Campground are now filling up with
blooming wildflowers as they do each May. They’re not
all blooming yet, but it’s beginning to look like
someone went to a whole lot of work planting a very
large rock garden in clefts of bedrock and boulders, and
filled up all the little spaces of soil. Some grow from
very small cracks in the boulders and bedrock, so small
you wonder how they survive. Lupine is out in full
splendor there and on down the road almost to Happy Camp
now, and cultivated lilacs at most all the homes and
where homes have been, is all in full bloom as are Iris,
which helps you to identify where homes have been since
they live an incredibly long time up here with no care.
Everything is now lush and green and the leafing out of
trees, and blooming trees has completely changed the
winter look, so much that Jim just marvels at it, it is
so changed in looks.
The river is still high, but does not look like flood
stage any longer. There is still snow in the Marble
Mountain Wilderness to the south of the highway, so snow
melt is still coming in, but most of the small seasonal
waterfalls have stopped flowing now that the rain has
stopped and things are drying out well. There was smoke
from Hamburg to Seiad on our return home about 5-6:30 pm
yesterday, but couldn’t see if it was a prescribed burn
or a fire, and it thinned out before we got to Happy
Camp.
I am sleeping little right now until I finish my steroid
for this period this evening, so I am getting things
done, but it will be a struggle for the next few days as
I come down from that medication, but I think I have the
worst of it whipped now, and am hoping to get a lot done
in the next few weeks, Hurray! We are really enjoying
sitting out at our new table and chairs on the deck each
day, whether we’re alone or have company, and watching
all the changes, while I try to figure out just what
some of the plants are. Most are deer resistant and
require little care, other than some water when needed,
except for the lawn, which does require mowing and
trimming at this time of year, and a few things need a
bit of pruning at times.
We’re looking forward to having a lot of you visit us
this summer, when you can enjoy it with us. Since we
get so much shade here it will be nice out there all
summer.
We are looking forward to having a wonderful summer with
a much better outlook than earlier this year, and we
want to thank all of you who have added prayers to ours,
and who have been so helpful with suggestions and offers
of help to us. All of this has a profound effect on our
outlook, and is very much appreciated. It has helped a
lot in turning our situation completely around, with a
more normal outlook for the coming summer than we have
faced in quite some time.
Marcie and Jim
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